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CHIESI & Patients

In Rare Stories erzählen Menschen von ihren Erfahrungen mit seltenen Erkrankungen. Sie teilen ihre persönlichen Geschichten, geben wertvolle Alltagstipps und schenken Mut. Auch Angehörige berichten von ihren Erlebnissen, und Expert*innen liefern hilfreiche Einblicke. Jeden Monat eine neue Folge mit inspirierenden Geschichten und spannenden Insights. Hör mal rein und lass dich berühren!

PublishesMonthlyEpisodes36Founded2 years ago
Language
German
Number of ListenersCategories
MedicineHealth & Fitness

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Latest Episodes

Ein Alltag mit Nähe, Pflege und eigenen Wegen

Diese Folge ist ein persönliches Gespräch zwischen Lena und Christina, der Mutter

von Clara. Clara lebt mit Epidermolysis bullosa und die Familie begleitet sie durch

den Alltag mit der Erkrankung. Christi... more

Familie, Kindergarten und Inklusion – zwei Perspektiven auf EB

Wie fühlt sich Kindheit mit Epidermolysis bullosa an zu Hause, im Kindergarten,

mitten im Leben? In dieser besonderen rare stories-Folge führt Lena (selbst EB-

betroffen) durch zwei Gespr... more

Wie Clara mit EB lebt – und Dr. Meisterfeld erklärt, was dahintersteckt.

In dieser Folge von rare stories geht es um eine der seltensten Hauterkrankungen überhaupt: Epidermolysis bullosa (EB) – auch bekannt als Schmetterlings-krankheit. Dr. Susann Me... more

Chris Wolf und Dr. Berthold Wilden im Gespräch über Alltag, Diagnose und Unterstützung

Morbus Fabry ist selten und doch sind die Geschichten der Betroffenen alles andere als unsichtbar. In dieser Folge von rare stories spreche ich mit zwei besonderen... more

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1. Blind verstehen – der PRO RETINA-Podcast
2. Sichtweisen
3. Betreutes Fühlen

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rare stories Podcast launched 2 years ago and published 36 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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