Cortical visual impairment (CVI) is the leading cause of pediatric visual impairment in the developed world. The eyes can see, but the brain can't interpret the visual world. Due to neuroplasticity, the functional vision of a child with CVI can improve. The number of children with CVI is growing, so why isn't anyone talking about this public health crisis? We are. Music by Storm Crews. Art by Ian ... more
Publishes | Monthly | Episodes | 17 | Founded | 6 years ago |
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Categories | ParentingKids & Family |
Cindy Younan, founder of cvijourney.com and mother to Valentina (1.5 years), describes the day during her pregnancy when she found out about her daughter’s complications. There have been highs, lows and personal sacrifices since then, which Cindy has... more
Kira Brady tells the journey to her son’s diagnoses, which include cerebral palsy (CP), periventricular leukomalacia (PVL) and cortical visual impairment (CVI). We marvel at how it can be so difficult to get a diagnosis even when, in hindsight, Mason... more
Barbara Lopez Avila has a PhD in developmental psychology. But she says she still feels ill-prepared to help her son Logan navigate life with cortical visual impairment (CVI). more
Grace (8) is a vibrant second grader with lots to say. She describes what it’s like to live with cortical visual impairment – the things that upset her and the special characteristics she relies on day-to-day. more
Find out how many people listen to Kaleidoscope: The Cortical Visual Impairment Podcast and see how many downloads it gets.
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This was one of the first resources we came across when we first learned about our daughter’s cortical visual impairment at-risk condition. Jessica and her family’s positivity were inspiring and encouraging at a time of uncertainty and worry. Thank you for this powerful platform for the CVI community.
This podcast offers families and friends of children affected by CVI something we all need more of: hope. Each episode is an opportunity to follow one child’s unique path from diagnosis to present. Each child featured has a message for us. Each parent interviewed has shared something which inspired me. This is awesome! Thank you.
This podcast provides much-needed inspiration, hope, and information for all those affected by Cortical Visual Impairment. Thank you, Jessica, for sharing these stories of neuroplasticity and people’s journeys with CVI - the triumphs, the struggles, and the often invisible, constant, hard work of parents (and some professionals) in-between.
Finally a chance for families to speak for themselves. Your poscast is informative, poignant, and meaningful. Thank you so much for the generousity you demonstrate in the sharing of your story. I am so grateful for your contributions.
I met Dan Sunday evening by chance in KWF, we exchanged pleasantries and then he shared your story and told me about the pod cast. It was inspiring, insightful and courageous to hear your personal story(plus a little disappointing- especially the hesitation&cya from your local education system even after you offered to pay for training for the teachers in Grace’s class - shame on those administrators). I’m sure Grace and the great work you and Dan are doing advocating for CVI will bring exposure... more
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this podcast launched 6 years ago and published 17 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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