Finché non ha un nome
Francesca Abruzzese - Chora MediaVivere con l’Atassia di Friedreich significa affrontare ogni giorno una sfida che lentamente cambia la vita, di chi ne è colpito e di chi gli sta accanto. Ascoltare le loro storie, dai momenti di difficoltà alle conquiste quotidiane, insieme alle voci di medici, ricercatori ed esperti come il prof. Saccà, il prof. Pandolfo e la dott.ssa Mariotti, permette di comprendere a fondo questa malattia rar... more
| Publishes | Weekly | Episodes | 5 | Founded | a month ago |
|---|---|---|---|---|---|
| Language |  Italian | Categories | Health & FitnessScienceLife SciencesMedicine | ||
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Latest Episodes
Quando Stefano riceve la diagnosi di atassia di Friedreich, sua madre Maria non resta ferma. Spinta dalla fiducia del figlio, fonda la sezione ligure di AISA, costruendo una rete che diventa punto di riferimento per famiglie, pazienti e caregiver. An... more
Dall’incertezza iniziale alla conferma genetica, fino alla costruzione di una rete di supporto familiare e associativo: Antonella Moggi racconta il percorso con suo figlio Paolo, diagnosticato a 14 anni. Grazie alle voci di esperti come i professori ... more
La diagnosi di una malattia rara come l’Atassia di Friedreich comporta un forte carico psicologico. Gian Mario, con atassia di Friedreich, e Maria, caregiver, raccontano la loro storia, mostrando come affrontano gli ostacoli quotidiani per vivere una... more
Tutto inizia dai primi segnali: movimenti scoordinati, cadute, goffaggine. Filippo, con atassia di Freidreich, e Maria e Antonella, caregiver, raccontano il lungo percorso verso la diagnosi di Atassia di Friedreich. Tra visite, esami e incertezze, em... more
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Finché non ha un nome launched a month ago and published 5 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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