Rephonic
Artwork for Beyond the Bleeds
Hemophilia
Bleeding Disorders
Hemophilia Outreach Center
Von Willebrand Disease
Stitches Doll Project
Gene Therapy
Lifestyle Medicine
Child Life
The Monthlies Project
HIV
Nosebleeds
Paramount Physical Therapy
Green Bay
Nutrition / Ultra-Processed Foods
Hemophilia Treatment Centers
Period Poverty
PTSD
Mentorship Program
Bleeding Disorders (hemophilia)
Sleep

Beyond the Bleeds is your go-to podcast for navigating life with bleeding disorders like hemophilia, von Willebrand disease, and more. Each episode brings expert insights, inspiring personal stories, and practical advice for managing these conditions. Whether you’re living with a bleeding disorder or supporting someone who is, this podcast offers support, education, and a sense of community. Join ... more

PublishesTwice monthlyEpisodes47Founded2 years ago
Number of ListenersCategories
MedicineHealth & Fitness

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Artwork for Beyond the Bleeds

Latest Episodes

Today on Beyond the Bleeds, Heather and guest co-host Erica are joined by Andrea Buxton, HOC’s Clinical Director and Nurse Practitioner, and Jill Larson, HOC’s nutritionist, for a conversation about lifestyle medicine. Together, they discuss how smal... more

Today on Beyond the Bleeds, Heather and John are joined by Dr. Bryan Schwebke from Paramount Physical Therapy. Together, they discuss the philosophy behind Paramount, the importance of movement and long-term wellness, and how HOC’s partnership with P... more

YouTube

Today on Beyond the Bleeds, Heather and John are joined by HOC nurse coordinator Kristin Petrie for a practical conversation about nosebleeds and bleeding disorders. Together, they discuss why nosebleeds happen, how to manage them at home, and when i... more

YouTube

Today on Beyond the Bleeds, Heather is joined by stand-in co-host Erica for a conversation with Angie Farrar, lead nurse coordinator from our Wausau clinic, about recognizing the early signs of a bleed and why acting early matters. From joint bleeds ... more

YouTube

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Recent Guests

Dr. Bryan Schwebke
Physical therapist at Paramount Physical Therapy
Paramount Physical Therapy
Episode: Movement, Wellness, and the Paramount Partnership with Dr. Bryan Schwebke
Kristin Petrie
Nurse coordinator
Bleeding disorders clinic (as referenced in episode)
Episode: Navigating Nosebleeds and Knowing When to Seek Help with Kristin Petrie
Angie Farrar
Lead nurse coordinator
Hemophilia Outreach Center (WAASA)
Episode: Recognizing the Signs of a Bleed and Knowing When to Act with Angie Farrar
Andrea Buxton
Nurse practitioner
Episode: Everyday Challenges of Living with HSD and EDS with Andrea Buxton and Brightyn Handrich
Brightyn Handrich
Physical therapist
Episode: Everyday Challenges of Living with HSD and EDS with Andrea Buxton and Brightyn Handrich
Kathleen Gerus-Darbison
Founder of the Stitches Doll Project, sociology professor
Stitches Doll Project; former NHF/National Hemophilia Foundation board member
Episode: Healing and Advocacy Through the Stitches Doll Project, Part 1 with Kathleen Gerus-Darbison
Matt Barkdull
Clinical supervisor at the Center for Change and historian of hemophilia
Center for Change
Episode: Understanding Hemophilia Through History and Lived Experience with Matthew Barkdull Part 2
Donna Varney
Mother of child with severe hemophilia B, early advocate
Hemophilia Outreach Center community
Episode: Navigating Emotions After a Hemophilia Diagnosis with Donna Varney and Maria Bularz
Maria Bularz
Sister of a person with hemophilia, later caregiver and advocate
Family member in Hemophilia Outreach Center community
Episode: Navigating Emotions After a Hemophilia Diagnosis with Donna Varney and Maria Bularz

Hosts

Heather Hansen
Host with clinical social work background, frequently guiding discussions on patient support, care coordination, and advocacy within the bleeding disorders community.
John Mazzariello
Co-host and host with historical and clinical insights, often anchoring discussions on care models, patient journeys, and family perspectives in bleeding disorders.

Reviews

5.0 out of 5 stars from 13 ratings
  • So informative!

    Thank you for bringing so much information to the public regarding something that can be seen only rarely in community hospitals!

    Apple Podcasts
    5
    Dr. Maguire
    United States2 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Leans into advocacy and community-building with thoughtful guest selection.
Strong emphasis on multidisciplinary care and real-world experiences.
Clear, practical guidance for families navigating bleeds and care pathways.

Talking Points

Recent interactions between the hosts and their guests.

Nutritionist Advice for Getting the Most From Vitamins with Jill Larson
Q: What should people be looking for on labels when they buy vitamins and supplements, especially given the variability in the market?
Look for third-party testing certificates like USP, NSF, or Consumer Labs to ensure the dose matches the label, the product dissolves properly in the body, and there are no contaminants; beware of vague terms like natural, and understand RDA values, fortification, and enrichment.
Nutritionist Advice for Getting the Most From Vitamins with Jill Larson
Q: Can you talk a bit about how vitamins are categorized or grouped in terms of solubility and how that affects how we take them?
Vitamins are divided into fat-soluble and water-soluble groups; fat-soluble vitamins are stored in fat and can accumulate if taken in excess, whereas water-soluble ones are excreted in urine and typically require regular intake; there are eight B vitamins plus vitamin C that are water-soluble.
Nutritionist Advice for Getting the Most From Vitamins with Jill Larson
Q: To kick things off, can you explain then what vitamins actually are and why they are important for our health?
Vitamins are essential nutrients, 13 in total, that we must obtain from food because the body cannot make enough of them; they support energy production, growth, reproduction, and overall health, and many participate in enzyme functions or act like hormones.
Improving Care through Trauma-Informed Practices in Hemophilia Clinics with Amy Wilson
Q: What did you learn about the effectiveness of therapies like Trauma-Focused CBT and EMDR for this population?
While the study did not measure treatment effectiveness directly, existing research indicates PTSD from medical trauma is highly treatable, with therapies like Trauma-Focused CBT and EMDR showing strong efficacy in adults and children, supplemented by education and supportive counseling.
Improving Care through Trauma-Informed Practices in Hemophilia Clinics with Amy Wilson
Q: What strategies can healthcare teams implement to support patients with trauma in a trauma-informed, comprehensive clinic setting?
Strategies include recognizing medical visits as potential triggers, maintaining safety and control for patients, offering choices and clear explanations, co-regulation through calm presence, early screening, involving social workers, and integrating mental health resources into routine care.

Audience Metrics

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Listeners per Episode
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Frequently Asked Questions About Beyond the Bleeds

What is Beyond the Bleeds about and what kind of topics does it cover?

This show covers practical, patient-centered care for bleeding disorders, spotlighting integrated care models, hands-on management of bleeds, and community-driven advocacy. Episodes frequently explore multidisciplinary approaches (nursing, PT, genetics), real-world caregiver and patient experiences, and historically informed perspectives on hemophilia and related conditions. A standout pattern is the emphasis on proactive care, accessibility of HTCs, and creative advocacy projects that foster awareness and resilience. The format often blends clinical guidance with personal narratives, making complex care pathways feel actionable for families, clinicians, and advocates alike.

Where can I find podcast stats for Beyond the Bleeds?

Rephonic provides a wide range of podcast stats for Beyond the Bleeds. We scanned the web and collated all of the information that we could find in our comprehensive podcast database. See how many people listen to Beyond the Bleeds and access YouTube viewership numbers, download stats, audience demographics, chart rankings, ratings, reviews and more.

How many listeners does Beyond the Bleeds get?

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What are the audience demographics for Beyond the Bleeds?

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How many subscribers and views does Beyond the Bleeds have?

To see how many followers or subscribers Beyond the Bleeds has on Spotify and other platforms such as Castbox and Podcast Addict, simply upgrade your account. You'll also find viewership figures for their YouTube channel if they have one.

Which podcasts are similar to Beyond the Bleeds?

These podcasts share a similar audience with Beyond the Bleeds:

1. BloodStream

How many episodes of Beyond the Bleeds are there?

Beyond the Bleeds launched 2 years ago and published 47 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

How do I contact Beyond the Bleeds?

Our systems regularly scour the web to find email addresses and social media links for this podcast. We scanned the web and collated all of the contact information that we could find in our podcast database. But in the unlikely event that you can't find what you're looking for, our concierge service lets you request our research team to source better contacts for you.

Where can I see ratings and reviews for Beyond the Bleeds?

Rephonic pulls ratings and reviews for Beyond the Bleeds from multiple sources, including Spotify, Apple Podcasts, Castbox, and Podcast Addict.

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How do I access podcast episode transcripts for Beyond the Bleeds?

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What guests have appeared on Beyond the Bleeds?

Recent guests on Beyond the Bleeds include:

1. Dr. Bryan Schwebke
2. Kristin Petrie
3. Angie Farrar
4. Andrea Buxton
5. Brightyn Handrich
6. Kathleen Gerus-Darbison
7. Matt Barkdull
8. Donna Varney

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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