Rephonic
Artwork for Beyond the Bleeds
Hemophilia
Bleeding Disorders
Hemophilia Outreach Center
Gene Therapy
Von Willebrand Disease
Stitches Doll Project
Lifestyle Medicine
Child Life
The Monthlies Project
HIV
Nosebleeds
History Of Hemophilia
Physical Therapy
Behavioral Health
Paramount Physical Therapy
Green Bay
Nutrition / Ultra-Processed Foods
Hemophilia Treatment Centers
Period Poverty
Mentorship Program

Beyond the Bleeds is your go-to podcast for navigating life with bleeding disorders like hemophilia, von Willebrand disease, and more. Each episode brings expert insights, inspiring personal stories, and practical advice for managing these conditions. Whether you’re living with a bleeding disorder or supporting someone who is, this podcast offers support, education, and a sense of community. Join ... more

PublishesTwice monthlyEpisodes50Founded2 years ago
Number of ListenersCategories
Health & FitnessMedicine

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Artwork for Beyond the Bleeds

Latest Episodes

Today on Beyond the Bleeds, Heather and John are joined by HOC’s Behavioral Health Specialist, Robin Lambrecht, for an important conversation about the connection between mental health and bleeding disorders. Robin shares how behavioral health extend... more

YouTube

Today on Beyond the Bleeds, Heather and John are joined by HOC’s IT Coordinator, Chris Woller, for a personal conversation about growing up with severe hemophilia B and how treatment has changed over the course of his lifetime. Chris shares his exper... more

YouTube

Today on Beyond the Bleeds, Heather and John are joined by Dr. Ken Friedman from Versiti Blood Center and HOC for a conversation about the evolution of hemophilia treatment. Drawing on decades of experience in hematology and bleeding disorders care, ... more

YouTube

Today on Beyond the Bleeds, Heather and guest co-host Erica are joined by Andrea Buxton, HOC’s Clinical Director and Nurse Practitioner, and Jill Larson, HOC’s nutritionist, for a conversation about lifestyle medicine. Together, they discuss how smal... more

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Recent Guests

Robin Lambrecht
Behavioral Health Provider at HOC
Hemophilia Outreach Center
Episode: It’s Okay to Not Be Okay: Mental Health and Bleeding Disorders with Robin Lambrecht
Ken Friedman
Dr. Ken Friedman, affiliated with Versiti Blood Center and Hemophilia Outreach Center (HOC)
Versiti Blood Center; Hemophilia Outreach Center (HOC)
Episode: The Evolution of Hemophilia Treatment with Dr. Ken Friedman
Jill Larson
Nutritionist at HOC
Hemophilia Outreach Center
Episode: Small Changes, Big Impact Through Lifestyle Medicine with Andrea Buxton and Jill Larson
Andrea Buxton
Clinical Director and Nurse Practitioner at HOC
Hemophilia Outreach Center
Episode: Small Changes, Big Impact Through Lifestyle Medicine with Andrea Buxton and Jill Larson
Dr. Bryan Schwebke
Physical therapist at Paramount Physical Therapy
Paramount Physical Therapy
Episode: Movement, Wellness, and the Paramount Partnership with Dr. Bryan Schwebke
Kristin Petrie
Nurse coordinator
Bleeding disorders clinic (as referenced in episode)
Episode: Navigating Nosebleeds and Knowing When to Seek Help with Kristin Petrie
Angie Farrar
Lead nurse coordinator
Hemophilia Outreach Center (WAASA)
Episode: Recognizing the Signs of a Bleed and Knowing When to Act with Angie Farrar
Kathleen Gerus-Darbison
Founder of the Stitches Doll Project, sociology professor
Stitches Doll Project; former NHF/National Hemophilia Foundation board member
Episode: Healing and Advocacy Through the Stitches Doll Project, Part 1 with Kathleen Gerus-Darbison
Matt Barkdull
Clinical Supervisor at the Center for Change; published author and history buff
Center for Change
Episode: Understanding Hemophilia Through History and Lived Experience with Matthew Barkdull Part I

Hosts

Heather Hansen
Host with clinical social work background, frequently guiding discussions on patient support, care coordination, and advocacy within the bleeding disorders community.
John Mazzariello
Co-host and host with historical and clinical insights, often anchoring discussions on care models, patient journeys, and family perspectives in bleeding disorders.

Reviews

5.0 out of 5 stars from 13 ratings
  • So informative!

    Thank you for bringing so much information to the public regarding something that can be seen only rarely in community hospitals!

    Apple Podcasts
    5
    Dr. Maguire
    United States2 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Leans into advocacy and community-building with thoughtful guest selection.
Strong emphasis on multidisciplinary care and real-world experiences.
Clear, practical guidance for families navigating bleeds and care pathways.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

It’s Okay to Not Be Okay: Mental Health and Bleeding Disorders with Robin Lambrecht
Q: What are a few simple things people can do regularly to support their mental wellness?
Maintain basic self-care like adequate sleep, balanced meals, hydration, physical activity, staying connected with support networks, and flexible expectations; activities such as breathing exercises, journaling, and progressive muscle relaxation can help as coping tools.
It’s Okay to Not Be Okay: Mental Health and Bleeding Disorders with Robin Lambrecht
Q: What does starting therapy or counseling actually look like?
Starting therapy involves an initial intake to build familiarity and safety, with a focus on the client driving the pace of disclosure; if the match isn't right, it's encouraged to try another therapist until a good fit is found.
The Impact of Physical Therapy on Bleeding Disorder Patients with Dr. Brightyn Handrich
Q: Can exercise and PT repair existing joint damage, or are they primarily about prevention and optimization of function?
The focus is mostly on optimizing function and preventing further damage. There is a mechanism called CREEP that helps widen joint space with activity to improve lubrication and reduce pain, but PT cannot surgically repair damaged joint surfaces; instead, it works to preserve and protect joints and manage symptoms.
The Impact of Physical Therapy on Bleeding Disorder Patients with Dr. Brightyn Handrich
Q: How does physical therapy actually improve mobility, strength, and joint health for the bleeding disorder community?
PT starts with a comprehensive evaluation using hands-on techniques, education, and a mix of stretching and active exercise to improve range of motion, strength, and balance, while carefully distinguishing joint bleeds from ordinary issues. Over time, it emphasizes gradual progression and home practice to maintain gains and reduce injury risk.
Nutritionist Advice for Getting the Most From Vitamins with Jill Larson
Q: What should people be looking for on labels when they buy vitamins and supplements, especially given the variability in the market?
Look for third-party testing certificates like USP, NSF, or Consumer Labs to ensure the dose matches the label, the product dissolves properly in the body, and there are no contaminants; beware of vague terms like natural, and understand RDA values, fortification, and enrichment.

Audience Metrics

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Frequently Asked Questions About Beyond the Bleeds

What is Beyond the Bleeds about and what kind of topics does it cover?

This show covers practical, patient-centered care for bleeding disorders, spotlighting integrated care models, hands-on management of bleeds, and community-driven advocacy. Episodes frequently explore multidisciplinary approaches (nursing, PT, genetics), real-world caregiver and patient experiences, and historically informed perspectives on hemophilia and related conditions. A standout pattern is the emphasis on proactive care, accessibility of HTCs, and creative advocacy projects that foster awareness and resilience. The format often blends clinical guidance with personal narratives, making complex care pathways feel actionable for families, clinicians, and advocates alike.

Where can I find podcast stats for Beyond the Bleeds?

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How many listeners does Beyond the Bleeds get?

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How many subscribers and views does Beyond the Bleeds have?

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Which podcasts are similar to Beyond the Bleeds?

These podcasts share a similar audience with Beyond the Bleeds:

1. Wait Wait... Don't Tell Me!
2. Darknet Diaries

How many episodes of Beyond the Bleeds are there?

Beyond the Bleeds launched 2 years ago and published 50 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

How do I contact Beyond the Bleeds?

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Where can I see ratings and reviews for Beyond the Bleeds?

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What guests have appeared on Beyond the Bleeds?

Recent guests on Beyond the Bleeds include:

1. Robin Lambrecht
2. Ken Friedman
3. Jill Larson
4. Andrea Buxton
5. Dr. Bryan Schwebke
6. Kristin Petrie
7. Angie Farrar
8. Kathleen Gerus-Darbison

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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