The goal of our “Ask the Expert” podcast series is to share the latest research and information on rare neuroimmune disorders and provide an avenue for individuals diagnosed with these disorders and their family members to ask questions to experts who specialize in these disorders. The podcasts are moderated based on questions submitted by our community. We would like to hear from you. If there ar... more
Publishes | Weekly | Episodes | 159 | Founded | 11 years ago |
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Number of Listeners | Categories | Health & FitnessMedicine |
In part six of the “Ask the Expert, Research Edition” mini-series, “Parenting is Hard,” Krissy Dilger of SRNA was joined by Barbara Babcock, a family therapist from the UK's National Health Service, to discuss the role of siblings in families with a ... more
In this episode of the SRNA "Ask the Expert" podcast moderated by Dr. GG deFiebre, Dr. Kyle Blackburn and Dr. Benjamin Greenberg discussed the need for updated diagnostic criteria for myelitis. Dr. Blackburn explained the term myelitis and the import... more
Krissy Dilger of the Siegel Rare Neuroimmune Association (SRNA) was joined by experts Janet Dean, MS, RN, CRRN, CRNP and Florence Hanssen, RN to discuss skin health and the prevention of skin breakdown. The conversation covered the structure of the s... more
At the end of this mini-series, we will host a Q&A episode where Barbara will answer questions from the community. To submit your question, please visit srna.ngo/submit
In part five of the “Ask the Expert, Research Edition” mini-series, “Par... more
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Beyond grateful for this podcast.
This podcast is so informative, thank you! I’d also really love a MOG Antibody Related Disorder follow up episode. A neuropsychiatric symptoms and treatment episode would be great too!
Can u please do an updated interview with Dr. Greenberg about MOG antibody?
These podcasts are absolutely wonderful. I am a 6th year TM patient & just to know that we have such highly qualified medical professionals in our camp now is an enormous comfort.
When I was first diagnosed, only 6 years ago, there was virtually nothing available to us in the UK; the neurologist who diagnosed me saw me once & signed me off her list because there was ‘nothing else I can do for you’! The night after my diagnosis delivery was spent on my iPhone, Googling the subject as it was app... more
Listeners, social reach, demographics and more for this podcast.
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Ask the Expert launched 11 years ago and published 159 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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