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Ask the Expert (coming soon: SRNA Soundwaves)

Siegel Rare Neuroimmune Association (SRNA)

SRNA Soundwaves is a podcast network that brings together expert insight, research updates, and experiences from the rare neuroimmune disorder community. Through multiple series, SRNA Soundwaves connects those living with rare neuroimmune disorders, caregivers, clinicians, and researchers with trusted information and meaningful conversations that educate, empower, and inspire. Topics include acute... more

PublishesWeeklyEpisodes209Founded12 years ago
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MedicineHealth & Fitness

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Latest Episodes

In this "ABCs of MOGAD" episode, "Steroid Dependence," Krissy Dilger of SRNA was joined by Dr. Eoin Flanagan from the Mayo Clinic in Rochester, MN. They began with a summary of how steroids are used to manage MOG antibody disease, particularly during... more

BIG ANNOUNCEMENT! Beginning January 5, 2026, SRNA is bringing all five of our podcast series together into a single, unified podcast channel called “SRNA Soundwaves.” This means that all episodes of "Ask the Expert, ABCs of MOGAD, ABCs of NMOSD, ADEM... more

The "Community Meets Clinic" podcast series introduces clinicians and healthcare personnel specializing in rare neuroimmune disorders. In this episode, Krissy Dilger of SRNA interviewed Dr. Alexandra Kornbluh from Children's National Hospital in Wash... more

In this episode of "ABCs of NMOSD," host Landy Thomas, joined by Doug Newby, Heather Dawn Newbie, and Caitlyn Flickinger, discussed the impact of NMOSD on romantic relationships. The guests shared their personal experiences with relationships and how... more

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Reviews

4.9 out of 5 stars from 31 ratings
  • Thank you!!! ⭐️⭐️⭐️⭐️⭐️⭐️⭐️⭐️⭐️

    Beyond grateful for this podcast.

    Apple Podcasts
    5
    test12341234
    United States5 years ago
  • Great podcast

    This podcast is so informative, thank you! I’d also really love a MOG Antibody Related Disorder follow up episode. A neuropsychiatric symptoms and treatment episode would be great too!

    Apple Podcasts
    5
    cgphil
    United States6 years ago
  • Very informative!

    Can u please do an updated interview with Dr. Greenberg about MOG antibody?

    Apple Podcasts
    5
    h0ney23badger
    United States6 years ago
  • Incredibly Helpful & Reassuring!

    These podcasts are absolutely wonderful. I am a 6th year TM patient & just to know that we have such highly qualified medical professionals in our camp now is an enormous comfort.

    When I was first diagnosed, only 6 years ago, there was virtually nothing available to us in the UK; the neurologist who diagnosed me saw me once & signed me off her list because there was ‘nothing else I can do for you’! The night after my diagnosis delivery was spent on my iPhone, Googling the subject as it was app... more

    Apple Podcasts
    5
    arpi12
    United Kingdom8 years ago

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Ask the Expert launched 12 years ago and published 209 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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