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The Rare hour with Christopher Velona

Christopher Velona
Mental HealthHealth & Fitness

Join us for a one-hour rare disease community support group. Here we will discuss the topics that affect your daily life in rare diseases as well as special needs. Being a parent is hard but having a child in rare disease takes a special kind of person and the journey is filled with potholes along the way. The pathway may never be clear, but together we can navigate by supporting each other. P.S. we are not a glum lot!

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Latest Episodes

The first two weeks of September or very painful and challenging. However, what does not kill you makes you stronger right? Thank God for my friends at global genes. The rest of the month should be easy!

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2 months ago

Megan is changing how rare disease families interact. With the help of social media, Megan's spin on the day-to-day lives of rare diseases has us laughing a bit more. You can see in her Instagram reels as she tells the truth through deadpan humor.  more

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3 months ago

Stop wasting time and waiting on others to help you or your children. It's time for you and others to start moving this needle and start helping other children and families with support.

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4 months ago

Reviews

4 out of 5 stars from 4 ratings
  • Good to hear the real thing

    Really appreciate you keeping it real about frustration etc and also the liberal use of very necessary words 😉 which is 100% rare disease life, eh?

    Apple Podcasts
    5
    Hannah Lowe Corman Art
    United States6 months ago

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The Rare hour launched 4 years ago and published 37 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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