
The Nephrotic Syndrome Foundation Podcast is an interview style podcast for families diagnosed with kidney disease, in particular Nephrotic Syndrome. We share our stories and tips for how we have managed our illness, and introduce you to inspirational people who have helped us in this journey. Join us as we cover everything from recovery to mental health to nutrition. Our goal at NSF is to meet ea... more
| Publishes | Twice monthly | Episodes | 9 | Founded | 5 years ago |
|---|---|---|---|---|---|
| Categories | Health & FitnessSelf-ImprovementEducationMental Health | ||||

(3:14) “I had a lot of people who are not part of our Nephrotic Syndrome community, tell me that they listened to it, and just cried the whole time… good friends of mine, who know our story, but haven't necessarily heard it start to finish because no... more
(2:06) Feeling alone and reaching out,…
(2:55) The events leading up to diagnosis…
(6:11) “When I was in the middle of it, I just felt so uncomfortable. I felt so sick. I was so tired, and I felt so grateful that I was older and able to talk when I... more
(1:46) An Instagram meeting…
(3:24) Was it an allergic reaction or something more?
(7:54) Misdiagnosis, swelling, and biopsy…
(11:06) “And I’m not going to lie. I was so scared. I remember having a panic attack at that time of my life. I was quite... more
(2:30) How Nicki got connected to the NSF Peer Team and the power of a community…
(5:11) Nicki’s nephrotic syndrome journey begins…
(9:57) A Google search reveals scary possibilities…
(11:32) A trip that revealed so much…
(14:07) “So I was wearin... more
It is incredible to hear the story’s told by these warriors and their family’s. The vulnerability and experiences shared are invaluable. Keep up the great work :)
I’m a mother of a warrior daughter with Nephrotic Syndrome. We have been on this journey for 10 years and counting. Up until this podcast my daughter and I have been alone on our journey as we have never meet or even heard conversations of people like us on this journey. Recently we have just reached remission after a very hard relapse. Loved hearing of other warriors on the same journey as us. Please keep these coming, eagerly waiting for the next podcast. Listening from Yukon Canada!
Its so amazing to listen to can’t wait for more to come.❤️










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